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Schell Shocked

My journey with Neuroendocrine (NET) tumors and carcinoid syndrome

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One month // One heck of a journey

On December 28, 2022December 28, 2022 By Christopher Schell1 Comment

Well, it's been exactly one month since my surgery. In some ways it feels like a few days and in others it feels like it's been a year. As with so many things in life the last month has been all about managing (and forgetting about) expectations. Overall, I'm doing great! So much better than …

Continue reading One month // One heck of a journey

Day 15: My liver is mad at me but it likes food now

On December 15, 2022 By Christopher SchellLeave a comment

It's been a few days since Jenny posted – which is a good thing. She needed a break and so did I. It's been a wild, wild ride that none of us could have expected and I think we're still trying to fully wrap our heads around it all. It's been so great to be …

Continue reading Day 15: My liver is mad at me but it likes food now

Day 12: Two words

On December 12, 2022 By jschell10 Comments

He's home!!!

Day 11: Shake it out

On December 11, 2022December 11, 2022 By jschell4 Comments

Dr. Liu stopped by to see Chris yesterday afternoon and again this morning. He thinks Chris will need to stay on the "liquids only" path for a while. He can't say when his ileum will start being more responsive, but there's no reason to think that it won't. Hopefully, it's sooner rather than later. Chris …

Continue reading Day 11: Shake it out

Day 10: Back to the liquids

On December 10, 2022December 10, 2022 By jschellLeave a comment

(Very fitting, as Chris is currently watching Back to the Future) So, it turns out Chris' insides aren't ready for any type of food - soft solids or not. Dr. Liu ordered a CT scan yesterday, which showed that his ileum wasn't moving much of anything through it. That's why he's having so much pain …

Continue reading Day 10: Back to the liquids

Day 9: Morning update

On December 9, 2022December 9, 2022 By jschell1 Comment

Chris had a rough Thursday night and didn't sleep after trying some soft solid foods around 6 pm – Cream of Wheat & mashed banana. I won't go into the details, but he's back to sips and chips, and they will give him a clear Ensure to try and get his energy back up. He'll …

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Day 8: 20 toes crossed & Richard.

On December 8, 2022December 8, 2022 By jschell4 Comments

Just after I posted yesterday's blog, Chris started feeling nauseous. The scrambled eggs delivered by food service no longer sounded appealing, so he just took a few small bites. We were worried that would happen 🙁 The night nurse was great about helping Chris work through his symptoms, so thankfully, Chris was able to get …

Continue reading Day 8: 20 toes crossed & Richard.

Day 7: 2 scrambled eggs & 20 fingers crossed.

On December 7, 2022December 8, 2022 By jschell1 Comment

Hello, friends & family! Quick update to let you know Chris is doing well today, exactly 1-week post-surgery. He tolerated the clear liquids so well this morning and afternoon that he was cleared for something soft for dinner. I know he's anxious about it; I am, too. He's smiling a bit, super coherent (a big …

Continue reading Day 7: 2 scrambled eggs & 20 fingers crossed.

Day 6: “I feel so free all of the sudden.”

On December 6, 2022 By jschell6 Comments

He's smiling again!! 🥳 This morning Dr. Liu was concerned by the amount of – we'll call it "stuff" – the NG tube had pulled out of his stomach overnight, so he asked the nurse to stop the suction on the NG tube for 4 hours and then check the amount of output once it …

Continue reading Day 6: “I feel so free all of the sudden.”

Day 5: NG tubes, hyperlinks, & everything in between

On December 5, 2022December 5, 2022 By jschell6 Comments

Hello! Chris continues to improve and we are both so very thankful that he's past the Saturday into Sunday experience. He told me last night it was the worst 24 hours of his life. I wholeheartedly agree. He still has the NG tube in, and the x-rays he had this afternoon show some improvement in …

Continue reading Day 5: NG tubes, hyperlinks, & everything in between

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