Well, it's been exactly one month since my surgery. In some ways it feels like a few days and in others it feels like it's been a year. As with so many things in life the last month has been all about managing (and forgetting about) expectations. Overall, I'm doing great! So much better than …
It's been a few days since Jenny posted – which is a good thing. She needed a break and so did I. It's been a wild, wild ride that none of us could have expected and I think we're still trying to fully wrap our heads around it all. It's been so great to be …
Continue reading Day 15: My liver is mad at me but it likes food now
Well, I guess it's time. Time to head to Denver and get these hormone-spiking tumors out of my liver. I'm having a pretty major surgery this Wednesday, November 30th, 2022. I'm ready to get this done and behind me but I'd be lying if I said I wasn't a little freaked out. Freaked out not …
It's been one year. December 18, 2018. I was sitting in my Jeep, waiting in line for my morning coffee at a Dutch Bros coffee stand. A normal day by most standards. Then my phone rang. I recognized the voice as Dr. Alfaro, my surgeon from Denver – the typical pep in his voice oddly …
Today (November 10th) is NET Cancer awareness day, which gives me the nudge I need to finally write a new post. As the universe would have it, I'm also experiencing some of the not-so-fun stomach symptoms that go along with gastrointestinal NETs, as if to say "hey, don't forget". Alas, I haven't forgotten about this …
Continue reading It’s worldwide NET Cancer Awareness Day and man am I aware.
For those following my journey, you'll note that I haven't posted in quite a number of months. I apologize for the hiatus and hopefully I haven't worried anyone unnecessarily. The long break has actually been a good thing. I've been doing really well and have been busy living life. Everyday life with all its celebrations …
Hold tight. The emotional roller coaster has officially left the station. I've been standing in line ever since getting my ticket to ride at my diagnosis. I tried letting the universe know that I'm not tall enough to ride this ride, but apparently the rules are somewhat lax around here. Through these first series of …
Continue reading Put your (t-rex) hands in the air like you just don’t care
I'm finding that updating a blog like this is an odd exercise. What do I share? What's important vs mundane details for my own personal mental snacking? Rather than using that as an excuse, I've decided to just write, which if you know me, is not easy. I like to have a plan. A story. …
The title above, "The Journey Begins" is the default page that WordPress sets up automatically when you start a blog . Serendipitous probably isn't the right word, but it sure is fitting given the nature of this blog. So I've decided to leave the title as is and take the first step in this new …
Based on what I know now, it's likely this journey actually started quite a while ago. I've had vague stomach issues for about 12 years now. Bloating that comes and goes, sensitivity to certain foods, some mild nausea, occasional diarrhea, etc. Pretty generic and standard stomach stuff that could mean hundreds of things or nothing …
Continue reading The prequels – the journey to a rare diagnosis
Schell Shocked 