Put your (t-rex) hands in the air like you just don’t care

Hold tight. The emotional roller coaster has officially left the station. I've been standing in line ever since getting my ticket to ride at my diagnosis. I tried letting the universe know that I'm not tall enough to ride this ride, but apparently the rules are somewhat lax around here. Through these first series of …

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The prequels – the journey to a rare diagnosis

Based on what I know now, it's likely this journey actually started quite a while ago. I've had vague stomach issues for about 12 years now. Bloating that comes and goes, sensitivity to certain foods, some mild nausea, occasional diarrhea, etc. Pretty generic and standard stomach stuff that could mean hundreds of things or nothing …

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